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"I suspect now that she was having kidney pain from the stone, but we didn’t know until she ended up with a severe infection."

– Mother of child with PH2

If you or someone in your family experiences any of these symptoms, contact your healthcare provider.

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I’m a caregiver for
someone with PH

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I'm a caregiver for someone with PH

Tips for caregivers

Learn tips for finding your community, keeping organized, explaining PH to others, and more.

Get tips

What is PH?

PH is a family of rare inherited disorders of the liver (PH1, PH2, and PH3) that can cause damage to the kidneys and throughout the body.

Learn about PH

Did you know that PH runs in families?

Genetic disorders like PH are passed down through families. Take a closer look at how PH is inherited.

PH in families

Caring for kids with PH

Find tips for keeping organized, helping kids drink more water, and getting a 504 plan.

What parents can do

Preparing for your next appointment

Find tips for preparing for an effective appointment and download the Discussion Guide.

How to prepare

Get updates

Sign up to stay in touch with the latest PH news and learn about resources that may help you or your loved one living with PH.

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